Ophie's Story

 

Ophie (short for Ophelia) was diagnosed with Acute Lymphoblastic Leukemia in January 2022 at just 4 years old. In the months leading up to her diagnosis, her parents, Bobbi and Curtis, noticed she had several "normal" illnesses but seemed to require more time to recover and had several symptoms that persisted. 

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Ophie went to her pediatrician on the morning of January 14th because her parents suspected that she had strep throat. Her pediatrician was concerned about some bruising that she had on her face and stomach. Blood work was done and her family received the phone call about an hour later that it was leukemia. Their world was shattered in an instant.

 

Ophie was admitted to Blank Children's Hospital that evening and her treatment started right away. Her older brothers (she has 3) have become even more protective of their baby sister.

 

Standard treatment for leukemia is around two years. Ophelia's end of treatment date is March 23, 2024. She has endured 5 cycles of chemotherapy, 2 bone marrow biopsies, 13 spinal taps and numerous blood product transfusions. 

 

Although there have been a few bumps in the road, Ophelia has tolerated her treatment very well. She is so strong and determined to "get rid of cancer."  She loves dancing, singing and everything that sparkles. She has such a sweet spirit.

 

Ophie dislikes being called brave because when she was first diagnosed everyone kept telling her how brave she was. Her mom, Bobbi, thinks it triggers bad memories of all she went through at the beginning. Instead of brave, her family uses the words "strong" or "tough."